168x Filetype PPTX File size 0.31 MB Source: www.cdc.gov
How Do I Talk to My How Do I Talk to My What if My Family Family About My Children? Does Not Want to How Do I Talk to My Family About My HBOC Diagnosis? If you have HBOC, each of your Talk? WHO: Your parents, siblings, and children has a 50% (1 in 2) chance Talking to some family members HBOC Diagnosis? children are the family members of having HBOC. Genetic testing for about HBOC might not be easy. who are most likely to have HBOC. HBOC is typically not Some might not understand why Other blood relatives, such as recommended for children younger they need to know this aunts, uncles, nieces, nephews and than 18, but can be considered information. Others might be cousins, are also more likely to when your children reach nervous about receiving a have HBOC. Your healthcare adulthood. diagnosis of HBOC. Remember provider or genetic counselor can that family members need to make help you figure out who in your Younger children might not be able their own choices about getting family might have HBOC and thus to understand what your diagnosis tested, whether or not you agree would benefit from knowing about means for you or for them. Children with their decisions. If family your diagnosis. differ in the age at which they are members don’t want to talk about ready to learn about this HBOC, respect their wishes. Let WHAT: You can share test results, information. Answer the questions them know you are available to letters from your doctor or genetic they ask. They will ask more talk if they have questions, and counselor, or other information you complex questions as they grow and give them places to find received about your diagnosis with are ready to learn more. information. your family. Giving family members information about your specific Know that your children may have When family members don’t want genetic mutation helps their fears about the risk both to to talk about HBOC, you might feel healthcare providers know exactly themselves and to you. Just as you upset or alone. Seek support from which test to use and might need time and support to cope with friends, healthcare providers, possibly save your family money. the information and accept it, so other family members, or people will your children. you know with HBOC. HOW: If you need extra support Where Can I Find talking to your family, bring a friend. You can also ask a family More Information? member to attend your next You can find information on HBOC medical appointment with you. The at: website http://kintalk.org can help https://www.cdc.gov/genomics/diseas you let your relatives know about e/breast_ovarian_cancer/index.htm your diagnosis and provides resources to help them learn more You can find information on about HBOC. A sample letter that support groups for breast cancer you can fill out and send to your at: family is available at http://www.diseaseinfosearch.org/Br https://www.cdc.gov/genomics/implemen east+Cancer/960 tation/toolkit/file/HBOC_letter_patie nts.docx and support groups for ovarian cancer at: http://www.diseaseinfosearch.org/C ancer%2C+Ovarian/5504
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