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Returning to Diet: MANAGEMENT TIPS & POINTERS FROM ADULTS WITH PKU BasedonInputfromAdultswithPKUofallAgesandSituations PKUAdult Program www.npkua.org www.npkua.org Made Possible by a Generous Donation from Art and Catherine Higgins, parents of two late diagnosed PKU children Complied by Annaliese Martinec, Graphics By Kinnon Martin Congratulations on taking this important Congratulations on taking this important step towards managing yourPKU! step towards managing yourPKU! Byreturningtodiet ortighteningyourcompliancewiththediet,youhave chosenapaththatwillleadyoutoamorehealthyandproductivelifestyle.You mayhavefeltlikeyouweretheonlyonewithPKUontheplanetgrowingup, but youarenotalone.Onepersoninevery15,000Americanshas Phenylketonuria (PKU). Chances are, there is someone near you going through similar challenges. TheNationalPKUAllianceAdultProgramisheretohelpyou. Thisbookletwas createdbyadultswithPKU,foradultswithPKU,and,especiallyforadultslike youwhoaretryingtoreturntothePKUdietarymanagement. Wehavedesignedthisbookletasasimplereminderofhowandwhytofollow aPKUtreatmentplan. Youwillfindshort,simplenotesfromotheradultswith PKU,bothdietforlifersandreturningtodieters,thatcanhelpyouwithyour return to diet. ThereIsAPlan Thefirst thing to know is that there is a management plan, and that it works. Therewasatimewhendoctorsbelieveditwasoktotakepatientsoffthediet. Researchnowshowsthatatreatmentplanshouldbecontinuedforlife.Some ƉĞŽƉůĞŵĂLJƌĞĐĂůůƚŚĂƚƚŚĞLJ͞ŚĂĚW
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